Here is a list of organization with resources available to the Ovarian Cancer community. It continues when clicking the Continue Reading link.
The Ovarian Cancer Alliance of San Diego (www.ocaofsd.org)
Peg Ford, Cancer Research Advocate, Founder/Chair. The Alliance strives to affect change in the way medical doctors consider the diagnosis and treatment of ovarian cancer; educate the medical community, patient organizations, and the community at large about early diagnosis; further research on evidence-based treatment options; and, ultimately, eradicate the disease.
The Clearity Foundation www.clearityfoundation.org
The Foundation helps patients with ovarian cancer and their physicians in making better-informed treatment decisions based on the molecular profile of the tumor (the “tumor blueprint”), thus enabling a more individualized approach to therapy selection. Patient support services include lab test coordination, tumor blueprint interpretation, and clinical trial identification free of charge.
FORCE (Facing Our Risk of Cancer Empowered) www.facingourrisk.org.
FORCE is a national nonprofit agency dedicated to improving the lives of indi- viduals and families affected by hereditary breast and ovarian cancer. Information on cancer management and treatment, clinical trials and research, support, advo- cacy, and events is offered on the website. A toll-free helpline can be reached at 1-866-288-RISK.
Foundation for Women’s Cancer www.foundationforwomenscancer. org
The Foundation offers many awareness, educational, and fundraising programs as well as comprehensive information about gynecologic cancer risk prevention, early detection, and optimal treatments provid- ed by gynecologic oncologists and other healthcare experts.
Guidelines International Network (G-I-N) www.g-i-n.net
G-I-N offers partnership opportunities for guideline organizations, assists in improving the efficiencies and effectiveness of healthcare guideline development, and promotes best practices through opportunities for learning and the establishment of standards. G-I-N/North America provides a community for North American guideline users, developers, and other stakeholders to form partnerships and discuss regional guideline issues.
National Ovarian Cancer Coalition (NOCC) www.ovarian.org
The Coalition is committed to improving the survival rate and quality of life for women with ovarian cancer. Through national programs and local chapter initiatives, NOCC’s goal is to make more people aware of the early symptoms of the disease. In addition, NOCC provides information to assist the newly diagnosed patient as well as hope and support to survivors and caregivers.
Ovarian Cancer National Alliance www.ovariancancer.org
The Alliance advocates at a national level for increases in research funding for the development of an early detection test, improved healthcare practices, and life-saving treatment protocols. The Ovarian Cancer Symptom Diary App (www.ovariancancer.org/app) helps individuals learn about the risks, signs, and symptoms of the disease. This first-of- its-kind application allows a woman to track symptoms that could indicate ovarian cancer, and alerts her if she should make an appointment with her doctor for further testing.
Ovarian Cancer Research Fund www.ocrf.org
The Ovarian Cancer Research Fund is the oldest and largest philanthropic organization in the United States funding ovarian cancer research. Through its auspices, more than $50 million has been granted to the most innovative and promising ovarian cancer research.
Patient Advocate Foundation (PAF) www.patientadvocate.org/ myresources
PAF advocates and mediates on behalf of patients to provide access to evolving therapies, therapeutic agents, and devices. Professional patient assistance is offered by telephone, email, or live web chat. PAF’s free My Resource Search app is an easy-to-use tool for healthcare, fi al, and insurance help that allows both insured and unin- sured patients to identify the communi- ty and national programs that can assist in their healthcare needs.
Society of Gynecologic Oncology (SGO) www.sgo.org
With more than 1700 domestic and international members, SGO is the premier medical specialty society for healthcare professionals trained in the comprehensive management of gynecologic cancers. SGO contributes to the advancement of women’s cancer care by promoting research, providing education, raising standards of practice, advocating for patients and members, and collaborating with other national and global organizations. l